Talking with your health care team

Your heart team knows what’s best in terms of supporting your heart health. Learn all you can about your congenital heart defect, and share any concerns or questions with your health care team.

Here are some questions you might want to ask:

• Can you tell me about my congenital heart disease?
• How often do I need to be seen for follow-up appointments? What about echocardiograms and other testing?
• What is my risk for heart problems over time?
• What symptoms should I watch for?
• Will I need another procedure or repair?
• What types of exercise are best?
• What else can I do to stay healthy?
• Is it safe for me to get pregnant?
• What resources do you recommend for people living with congenital heart defects?
• Do my children need to be worried or more closely screened for heart problems? What about genetic testing and counseling?
• Is there someone who has this condition who I can speak with, or perhaps a support group that might help?
• Are there resources to help me pay for ongoing care?